A new featured (via RSS) blog on the lower right-hand side of this page is donorcycle. This highlights the unique perspectives of a transplant co-ordinator - the person with just about the toughest job in the world.
One post in particular made me laugh - the one about having to actually use the loo once you have a new kidney.
This prompted several lung recipients to comment on how their first post-transplant sneeze felt like the take-off blast of a 747.
One well-meaning but highly ignorant person at my final job in my former career (pre-transplant) attempted to console me one day (not that I was particularly down, as I recall) by saying, "well never mind John, think of all that time you save not having to use the loo."
(This wasn't true anyway. Apart from the 27 hours per week I would put into dialysis and further 9 to 20 or more hours per week on related duties - machine set-up, machine stripping and cleaning, stocktake and ordering consumables, going to doctors, and so on - I was still producing about 600mL of wee each day even at my worst stage of the illness. Not enough to sustain life without dialysis but enough to let me drink 800mL of water per day, or even - gosh! - 1 litre on hot days. And this is before)
On a tangent, another even-more-ignorant person asked me one day if the many bottles of dialysate I had delivered to work for my home dialysis machine were in fact my blood being returned after being cleaned.
And he was serious. Just imagine - dislysis by distance delivery.
I mention this as examples of the incredibly ignorant and unthinking things some people might say to you.
But don't worry! My response was to use my famous/infamous sense of humour to speak darkly of a far worse genetic disorder especially prevalent amongst males and that I do not have and that I would not wish upon my worst enemy.
"What's that?", would be the anguished response (especially from a fellow bloke).
"Baldness," I would reply.
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POSTSCRIPT -15th September 2008: As usual I made a mistake in the maths above relating to my daily fluid ration. (A teacher in my primary school years said I couldn't do maths to save my life, and lo! She's almost correct!) I make another attempt below. If you are interested (and subject to the disclaimer) you are welcome to click on...
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